This weekend is Labor Day weekend and as is always the case, the MDA(Muscular Dystrophy Association) Jerry Lewis Telethon is this weekend. Through a quick email exhange I met Kayla's mom (see Kayla's Cure blog over there on the right). Kayla has myotonic dystrophy and through amazing efforts to find a cure for myotonic dystrophy, Kayla's mom is now the head of the Myotonic Dystrophy Foundation. This illness and 43 other muscular dystrophy illnesses are going to be supported this weekend during the telethon. Myotonic dystrophy has deeply affected many wonderful people, including Kayla. So if you get a chance, please watch Kayla's story this weekend on the program.
Tomorrow morning, Thursday, September 3rd through the 5th or 6th, Kayla's family will be on the MDA homepage: http://www.mda.org/, talking about what the telethon will mean to them. And then this weekend they will share Kayla's story and be interviewed live on the telethon. The current schedule for their appearances is:Sunday, September 6 – Hour 2 – 6:55 - 7:45 p.m. PacificMonday, September 7 – Hour 19 – 12:30 - 1:20 p.m. Pacific